Nursing Team; In this study northern Ireland Children’s Hospice has said that inadequate government funding may force the charity into making cuts to its end-of-life services, the Derry News can reveal. To this point, the local charity has only managed to maintain its current level of level of care thanks to “unwavering voluntary support”. It offers specialist paediatric hospice care for children who have been diagnose with a life limiting or terminal condition.
The specialist children’s nursing team ensure that each child lives well to the end of their lives; so surround by love and high-quality palliative and end of life care. These babies are now living for weeks, often months; so however the medical conditions are incredibly complex and therefore the need for children’s hospice care is growing. NIH Chief Executive Heather Weir explain that this year; so the cost to run the Northern Ireland Children’s Hospice is £4m, with just 36% of these costs met by government.
The Nursing Team
Its partnership approach with the Department of Health and the Health and Social Care Board has focus on addressing the increasing demand for paediatric palliative care in Northern Ireland. With joint investment from the Department of Health Transformation Funding from 2018–2020 and charitable funding from generous local donors; so additional capacity was fund in late 2018 with two additional cots being open at the Children’s Hospice.
However, the challenge for this partnership is to secure recurrent future; so investment to continue these vital services so that every parent who is give; so the devastating news that their child has a short life expectancy; which has access to the Children’s Hospice and that no child goes without palliative and end of life care. Ms Weir commented: “The lack of recurrent, sustainable funding means that we can only plan on a short-term basis with uncertainty regarding future government funding.
“In real terms, this represents over 1,000 vacant bed nights per year; which be use to care for children with highly complex life limiting conditions and end of life care needs. “In order to continue to deliver our current level of services; also address increasing demand, long-term planning is require to ensure the provision of palliative care for our children now and in the future.”
The difficult decision
“Thanks to unwavering voluntary support, we have not yet face with making; so the difficult decision to reduce services as a result of funding challenges. “However, continual low levels of government funding year on year; which will make service levels unsustainable in the long term. “With additional funding, children’s hospice care in Northern Ireland could be expanded. We could open our additional three beds and therefore be on hand to meet the increasing needs of local children and their families at a time when they need us most.”
Yesterday, in a statement to the Derry News, a spokesperson from the Health and Social Care Board said a needs assessment will inform its “commissioning intentions” going forward. She explain that it has a contract with the Northern Ireland Children’s Hospice for a short breaks service. That contract also includes bereavement support for families; also training for healthcare professionals on paediatric palliative care matters.
“In September 2018, the Board also commission a Paediatric and Life Limit Service from the Hospice. “This was commission to provide wraparound support for those children who are nearing the end of their short lives. This service will continue to be funded until March 2020. The arrangements for 2020/21 have yet to be determine.”