Heart Disease; Here study shows a story after an uneventful pregnancy, Amanda Blanch field thought she had delivered a healthy baby, a boy she and her husband named Cash. A slight heart murmur clued doctors that there was a problem. An echocardiogram uncovered cardiomyopathy, a disease of the heart muscle. In Cash’s case, an obstruction made it hard for blood to flow through his heart, causing it to work harder and grow larger.
A heart that should have the size of a strawberry instead nearly took up his entire chest. It was the worst case (his) doctors had ever seen, because his heart was so incredibly thick, Blanchfield recalled. Within two months of his birth, Cash was placed on a transplant list where he waited 51 days for a new heart. Today, he’s a healthy 3-year-old. But so much about the condition that nearly killed him remains a mystery.
The Heart Disease
It’s why a new report from the American Heart Association aims to raise awareness about the disease in children and urge more research to find better treatments. While cardiomyopathy in children is rare, it can “result in some of the worst pediatric cardiology outcomes,” according to the scientific statement publish Tuesday in the journal Circulation.
Cardiomyopathy occurs when cells in the heart muscle form abnormally or are affect adversely by other conditions, making it difficult for the heart to efficiently pump blood. Nearly 40% of children born with cardiomyopathy that results in heart failure or other symptoms either undergo a heart transplant or die within the first two years after diagnosis. The condition is the primary reason children older than 1 year old get heart transplants.
Everybody wants clinical practice guidelines, but this field hasn’t done enough clinical trials to be able to say, There’s really strong evidence that, if you see this, you should use this medicine, or you should treat in that way, said Lipshultz, chairman of the pediatrics department at the Jacobs School of Medicine and Biomedical Sciences at New York’s University of Buffalo.
Suffering for children
Cardio myopathies can be grouped into foZur categories. Lisa Yue’s husband was diagnose as a teenager with a type known as hypertrophic cardiomyopathy; but his case was consider mild. Still, it was enough of a concern for Yue to mention the disease to the pediatrician for her son Bryan.
The limit information available at the time led Yue and her husband to create the non profit; so Children’s Cardiomyopathy Foundation to help advance research and increase education. Yue said she hopes the AHA scientific statement will help physicians; so better understand this potentially life-threatening heart condition so that more lives can be saved.
This can cause incredible pain and suffering for children and their families; also it can be very costly to society, he said. Over time, research is leading to measurable, better outcomes. But they still have a long way to go if we really want to protect and preserve the next generation.