Michael Wright was just 16 when he was diagnosed with type 1 diabetes, and although his friends supported him, he always felt different. The study was published recently in the Journal of Medical Internet Research.

 

"I would do my injections and testing in private to avoid having conversations about diabetes with people," he said. It was also to avoid stares from strangers or awkward questions about how he got the blood sugar disease. People would sometimes ask, "Was it from eating too much fast food?" Wright recalled.

For some teens and young adults, feeling stigmatized leads them to ignore or forgo their diabetes management. This kind of stigma can lead to worse diabetes care, and a team of researchers (including Wright while he was a college student) recently examined the issue.

Blood sugar levels

The Canadian online survey of nearly 400 teens and young adults (ages 14 to 24) with type 1 diabetes found that stigma is pervasive. Nearly two-thirds reported feeling stigma because of their disease. And feeling stigmatized was linked to a twofold higher risk of poor blood sugar management, the study found.

"People who felt stigma had slightly less of a sense of well-being. Stigma doesn't make people feel good, and it can impair how the condition is managed," said senior study author Dr. Kaberi Dasgupta. She's an associate professor of medicine at McGill University in Montreal.

With type 1 diabetes, the immune system mistakenly attacks healthy, insulin-producing cells in the pancreas. Insulin is a hormone that helps usher the sugar from foods into the cells to be used as fuel. Someone with type 1 diabetes no longer makes enough insulin on their own and must replace it with injections or an insulin pump.

The study also looked at severe low blood sugar levels (hypoglycemia) that required assistance from another person to treat. Hypoglycemia occurs when someone takes too much insulin, causing shaking, sweating, a fast heart rate and changes in behavior.

If blood sugar levels drop too low, passing out and seizures can happen, according to the U.S. National Institute of Diabetes and Digestive and Kidney Diseases. "Among those who reported stigma, they were three times more likely to have had severe hypoglycemia," Dasgupta noted. They were also more likely to have poor blood sugar management.

Dr. Mary Pat Gallagher is director of the Pediatric Diabetes Center at Hassenfeld Children's Hospital at NYU Langone Health in New York City.  "It's a very normal thing for this age group to feel different anyway, so we have to come up with some creative solutions to work with them where they are," she said.