Nepal is among the one that does not provide free treatment for the disease in South Asia. So the doctors suggest Nepal government provide financial support for patients who are in need of highly expensive treatments.
Krishna Bahadur Adhikari, 29, was diagnosed with hemophilia disorder at the age of 13. When he visited a dentist after continuous bleeding from his teeth and he was referred to Bir Hospital where it was confirmed that he had hemophilia disorder.
“Treatment for this disorder is very expensive. However, Nepal Hemophilia Society is providing us factor free of cost,” said Adhikari.
There are more than 600 hemophilia patients who require factor, which is very expensive, said Dr Bishesh Paudel, chief haematologist at Civil Service Hospital.
He said common people in the country could not afford treatment of hemophilia. “The government has to provide free treatment to such patients,” he added.
Hemophilia is a genetic disorder that impairs the body’s ability to make blood clots, a process needed to stop bleeding. This results in continuous bleeding in case of any physical injury.
Around 618 patients diagnosed with hemophilia are getting treatment at the hospital, according to the data with Nepal Hemophilia Society while the data with World Health Organisation shows that there are around 3,000 such patients in the country.
Though there are very few patients suffering from this disorder, the government hasn’t done anything for their treatment. Paudel said that one unit factor costs one US dollar while a person with this disorder requires 2,000 to 3,000 units of factor to stop bleeding.
Bir Hospital, TU Teaching Hospital, Kathmandu Medical College and Civil Service Hospital provide treatment for hemophilia.
“We have been conducting surgeries of hemophilia with the financial aid provided by non-governmental organisations and they are also providing required units of factors for the patients,” said Dr Bishesh.
“Hemophilia patients require huge sum of money even for diagnosis of the disease,” said Dr Niraj Singh, a hematologist at Bir Hospital. Although Bir Hospital had established Hemophilia Care Centre 20 years ago but due to lack of required factors, the centre became dysfunctional.
Speaking to hemophilia patients on the occasion of World Hemophilia Day yesterday, Dr Singh said that the government should provide the medicine free of cost.